20 March 2019

Ready for Genomics? conference

Genomics is an innovative science with the potential to change the world as we know it. It brings about major shifts and raises societal questions, which, in many cases, cause concern for the general public. In response to this challenge, Génome Québec is organizing a conference on genomics and social acceptance.

The Ready for Genomics? conference, will provide an opportunity to discuss issues related to the integration of this disruptive technology into the health care system. Experts from the fields of science, media, education, social marketing, change management and health care will be present to share their views and contribute to this important social debate.


18 March 2019

The 13th Annual Human Genetics Students’ Society Conference

The McGill Human Genetics Students Society presents a One Day Conference:
"Human Genome Editing: Myths and Realities of Rewriting the Final Draft"
March 18th, 9:00 am – 5:00 pm
New Residence Hall, Ballroom, 3625 Park Ave, Montreal, QC, H2X 3P8

This year keynote speaker will be Dr. Gerald Schatten, the director of the Pittsburgh Development
Center and a professor and director of the Division of Developmental and Regenerative Medicine at the
University of Pittsburgh.  Formal talks by the speakers will be preceded by an informal panel discussion. This will be
followed by a wine and cheese networking event, during which all attendees will be able to interact directly
with the invited speakers.


rare disease day logo28 February 2019

The twelfth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities.

RARE DISEASES IN-ORBIT! 2019 LAUCHING OF INNOVATIONS

Many people from the Saguenay-Lac-Saint-Jean area (Quebec, Canada) are affected by rares diseases. Healthcare professionals and searchers of this area are creating tools to render accessible the rare expertise they have, improve access to healthcare and offer better services to those affected by a rare disease and their family. The RARE DISEASE DAY is one opportunity to outreach those tools.

This year health professionals and researchers in the region launch THREE PRACTICE GUIDELINES for neuromuscular diseases:

General Practitioner and Myotonic Dystrophy type 1 (DM1)
Occupationnal Therapist, Sexuality and Neuromuscular Diseases
Occupationnal Therapist working in primary care settings and Myotonic Dystrophy Type 1 (DM1)

At this time, they are available in French, but English version are expected somewhere in 2019.